MCAS and rare disease The Terrifying Uncertainty of Having a Child with an Illness that Changes Every Day (Today’s Parent, Aug 2018) How I Honor My Son on Rare Disease Day (The Mighty, Feb 2017) When I Accepted My ‘New Normal’ While Caring For My Son With a Rare Disease (The Mighty, Nov 2016) The Reality of Becoming a ‘Rare Disease Parent’ (The Mighty, May 2016)
